Family Burden with Inpatient Stroke Patients at the RSUD Budhi Asih DKI Jakarta hospital

Elisa Tesyani, Tuti Herawati


Objective: Stroke disability affects the care of dependents by the family. Patient dependence causes caregiver burdens, which

comprise physical, psychological, and economic burdens. This study aimed to describe the burden of family caregivers when

caring for their relatives in the hospital.

Methods: This cross-sectional study employed the purposive sampling method, which was performed at RSUD Budhi Asih, DKI Jakarta.

The Zarit Burden Inventory, Barthel Index, Glasgow Coma Scale, and demography of the family were used to describe

patient and family characteristics.

Results: The results showed that patients were predominantly male (80.8%), totally dependent (65.4%), and had a mildly impaired

consciousness level (GCS, mean=14.15). Caregivers were predominantly female (84.6%), most often the spouse

(61.5%) and provided > 12 hours/day caregiving (57.7%). Respondents described caregiver burden in hospital as

little/no (42.3%), mild (34.6%), and moderate (23.1%).

Conclusion: Burden for caregivers of stroke patients was most often described as no burden to moderate burden during inpatient stay at the hospital.

Therefore, researchers suggest the application of nursing interventions, such as providing education and involving

families in patient care.

Keywords: burden; family; stroke patient

Full Text:



Dhiman NR, Shah GL, JoshiD, Gyanpuri V. Relationship between side of hemiparesis and functional independence using activities of daily living index. Journal of the Anatomical Society of India. 2014; 63:S30–S35.

Vincent C, Destrosiers J, Ladreville P, Demers L, BRAD. Burden of caregivers of people with stroke: evolution and predictors. Cerebrovascular diseases. 2009;27:456–464.

Bastawrous M. Caregiver burden. International Journal of Nursing Studies. 2013;50:431–441.

Bhattacharjee M, Vairale J, Gawali K, Dalal PM. Factors affecting burden on caregivers of stroke survivors: Population-based study in Mumbai (India). Journal of Indian Academy of Neurology. 2012;15:113–119.

Pesantes MA, Brandt LR, Ipince A, Miranda J, Diez-Canseco F. An exploration into caring for stroke-surivor in Lima, Peru: Emotional impact, stress factors, coping mechanism and unmet needs of informal caregivers. eNeurologicalSci. 2017;6:33–50.

Lutz BJ, Young ME, Cox KJ, Martz C, Creasy KR. The crisis of stroke: experiences of patients and their family caregivers. Top Stroke Rehabil. 2013;1–16.

Mahinda LW. Evaluation of the informal caregiver burden in the care of stroke patients at kenyatta national hospital. Kenya: University of Nairobi. 2016.

Quinn TJ, Langhorne P, Stott DJ. Barthel index for stroke trials: development, properties, and application. Stroke. 2011;42(4):1146–1151.

Mansour OY, Megahed MM, Elghany EH. Acute ischemic stroke prognostication, comparison between Glasgow Coma Score, NIHS Scale and Full Outline of UnResponsiveness Score in intensive care unit. Alexandria Journal of Medicine. 2015;51(3):247–253.

Goldstein LB, Adams RB, Braun LT. Guidelines for the Primary Prevention of Stroke. AHA/ASA Guideline. 2011;517–584.

Miller CA. Nursing for Wellness in Older Adults. 6th ed. Philadelphia: Lippincott Williams & Wilkins; 2013.

Moon M. The unprepared caregiver. The gerontologist. 2017; 57:26–31.

Pei L, Zang XY, Wang Y, et al. Factors associated with activities of daily living among the disabled elders with stroke. International Journal of Nursing Sciences. 2016; 3:29–34.

Kwan J, Hand P. Early neurological deterioration in acute stroke: clinical characteristics and impact on outcome. QJM: An International Journal of Medicine. 2006;99(9):625–633.

Rathore JA, Kango ZA, Mehra A. Predictors of mortality after acute stroke a prospective hospital based study. J Ayub Med Coll Abbottabad. 2011;144–146.

O'Sullivan TL. Support for families coping with stroke or dementia special considerations for emergency management. Radiation Protection Dosimetry. 2009;134:197–201.

Gbiri CA, Olawale OA, Isaac SA. Stroke management: Informal caregivers burdens and strians of caring for stroke survivors. Annals of physical and rehabilitation. 2015;98–103.

Allender JA, Rector C, Warner KD. Community and public health nursing: promoting the public’s health 8th edition. Philadelphia: Lippincott Williams & Wilkins. 2014.

Hesamzadeh A, Dalvandi A, Maddah SB, Khoshknab MF, Ahmadi F. Family adaptation to stroke: A metasynthesis of qualitative research based on double ABCX model. Asian Nursing Research. 2015;177-184.

Tsai PC, Yip PK, Tai JJ, Lou MF. Needs of family caregivers of stroke patients: a longitudinal study of caregivers’ perspectives. Patient Prefer Adherence. 2015;9:449–457


  • There are currently no refbacks.